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|Registries & Databases|
SSC Databases and Registries
» Coagulation Sequence and structure database (CoagBase). A database of coagulation and platelet proteins and genes, protein features, reference sequences, locus specific mutation database links and a ready reckoner for conversion of legacy to Human Genome Variation Society (HGVS) amino acid numbering.
» Glanzmann's Thrombasthenia Database
» Survey on Anticoagulated Patients Registry: Registry for the computerized data collection of patients chronically treated with anticoagulants
» VWF Database
» Non-Immune Thrombocytopenia Registry--for inquiries please contact Dr. Amy Geddis at firstname.lastname@example.org
» International Epidemiological Study of Neonatal Purpura Fulminans -- A Web-based registry created under the auspices of the ISTH and hosted by The Hospital for Sick Children, Toronto, Canada. Members interested in partaking in this initiative, please contact email@example.com; firstname.lastname@example.org, or email@example.com.
» Mutations causing rare bleeding disorders: deficiencies of prothrombin, factor V, factor VII, factor X, factor XI, factor XIII, combined factors V and VIII, and vitamin K dependent coagulation factors. UPDATED TO JANUARY 2011.Supplement to Chapter 125 of Williams Hematology 8th Edition, 2010 (printed with permission from McGraw Hill)
» Rare Coagulation Disorders Resource Room:, a dynamic, open-access website,was developed through a collaboration of the international RBDD Registry (http://www.rbdd.org/), the Indiana Hemophilia & Thrombosis Center (www.ihtc.org), and the Rare Coagulation Disorders Subcommittee of the National Hemophilia Foundation (NHF, www.hemophilia.org), a group appointed by NHF’s Medical and Scientific Advisory Council. The Resource Room provides current and searchable information on the basic science, clinical management, available laboratory and genetic testing, clinical trials, and global research initiatives for these very rare and heterogeneous coagulation disorders.
12/3/2016 » 12/6/2016
American Society of Hematology (ASH) 2016 Annual Meeting
12/7/2016 » 12/9/2016
Musculoskeletal Ultrasound in Hemophilia
1/11/2017 » 1/12/2017
New Frontiers in Coagulation Medicine