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Request for Proposals: WFH World Bleeding Disorders Registry
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1/18/2017 at 8:34:03 PM GMT
Posts: 80
Request for Proposals: WFH World Bleeding Disorders Registry

The World Federation of Hemophilia (WFH) is seeking an academic or non-profit institution to develop, implement, and maintain a web-based data system for an international, multi-centre, observational World Bleeding Disorders Registry (WBDR). 

The registry will house encrypted bleeding disorder-related patient data from participating hemophilia treatment centres (HTC) around the world.  The intent is to develop a database of high-quality real-world data on patients with bleeding disorders to advance the understanding of bleeding disorders worldwide.

For more information and to view the Request for Proposal (RFP), please visit:

The Proposal submission deadline is Tuesday, February 28, 2017.  Potential candidates are requested to submit a Declaration of Interest by Tuesday, January 31, 2017. 

Inquiries should be directed to Donna Coffin, WFH Director of Research & Public Policy:

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