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News & Press: ISTH News

New World Thrombosis Day Patient Stories Further Illustrate Need for Awareness

Friday, August 14, 2015   (0 Comments)
Posted by: Luke Blount
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The World Thrombosis Day campaign released six new patient stories that further illustrate the need for awareness around the signs, symptoms and risks of venous thromboembolism (VTE), which is the formation of blood clots in the vein. When a clot forms in a deep vein, usually in the leg, it is called a deep vein thrombosis or DVT. If that clot breaks loose and travels to the lungs, it is called a pulmonary embolism or PE. Together, DVT and PE are known as VTE - a dangerous and potentially deadly medical condition. 

VTE can affect people of all ages, including people who are otherwise healthy. Read the stories below to learn more:

Marie-Victoire Cumming, an athletic 27-year-old from South Africa, suffered a DVT which moved to her lungs to form a PE after breaking her ankle during an obstacle course. A hospital associated-VTE, Marie-Victoire's case underscores the fact that up to 60 percent of VTE cases occur during or after hospitalization. Read more about Marie-Victoire.

Janice Johnson, a 57-year-old from the United States, also suffered from a hospital-associated VTE after breaking her arm and shoulder. Just prior being released from the hospital, doctors discovered a life-threatening PE. Had she returned home, she may have died. Read more about Janice
Suely Rezende, a 45-year-old medical doctor from Brazil, suffered a pulmonary embolism after a cross-Atlantic flight. Fortunately, Suely specializes in thrombotic diseases because local paramedics misdiagnosed her condition at first. Read more about Suely.
Tonya Lockwood, from the United States, was just 38 when she suffered from multiple PEs. It took weeks before doctors were able to diagnose the life-threatening condition. Her only risk factor was that she was using birth control at the time. Read more of Tonya's story.
Katie Projansky, of the United States, died of a PE at age 36 after doctors were unable to diagnose her condition. Katie was seven weeks pregnant at the time of her death, a common risk factor for developing blood clots. Read more about Katie.  
Emma Peters*, of the Netherlands, suffered a hospital-associated DVT and PE at age 29 after breaking a bone in her foot. Doctors gave her a preventative dose of blood thinners, but she still formed a clot due to other risk factors. She had a genetic condition that made her susceptible to form blood clots and she was also using contraception at the time. Read more of Emma's story
*Emma Peters is a pseudonym for a patient who wished to remain anonymous

World Thrombosis Day is a global awareness event occurring on October 13. Join the World Thrombosis Day campaign at

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