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News & Press: Opportunities for Participation

Participate in REDCap Project: International Registry on Symptomatic Hemophilia A/B Carriers

Wednesday, August 1, 2018   (0 Comments)
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Participate in the new REDCap Project: International Registry on Symptomatic Hemophilia A/B Carriers: The Pink Color of Hemophilia. 

Women, symptomatic carriers, of hemophilia are rare, but they have a quality of life overlapping that of affected males. Until now there are no registries or studies that consider all the aspects that distinguish the status of "carrier." The aims of this international registry are to evaluate the real incidence of the symptomatic carriers of hemophilia A and B in the world population, the assessment of their Quality of Life (QoL) through appropriate scores, and the evaluation of the subsequent clinical outcomes

Participate in the survey here. View other REDCap projects here.

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