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The ISTH and WFH Publish First International Needs Assessment for Hemostasis Nurses

Thursday, November 1, 2018  
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CHAPEL HILL, NC, USA – November 1, 2018 – The International Society on Thrombosis and Haemostasis (ISTH) announced today the publication of a new educational needs assessment for thrombosis and hemostasis nurses in the Society’s open-access journal, Research and Practice in Thrombosis and Haemostasis (RPTH). This first-ever comprehensive international, study is a project of the Global Hemostasis Nurses Alliance (GHNA), an initiative launched by the ISTH and the World Federation of Hemophilia (WFH) with support from Bayer. AxDev Group conducted the study.

The mixed-methods study provides a comprehensive representation of the barriers and challenges faced by nurses in the field of thrombosis and hemostasis and offers insights into the development of appropriate educational interventions. According to the needs assessment, six areas emerged as priorities for continuing education: 1) Understanding of von Willebrand disease (VWD); 2) Anticoagulant safety profile in specific patients; 3) Understanding the treatment of patients with inhibitors; 4) Patient risk assessments; 5) Individualization of care and communication with patients; 6) Accessing and implementing relevant professional education.

“This study is a comprehensive illustration of the current challenges faced by nurses in the field of thrombosis and hemostasis and indicates where the gaps in skills, knowledge and/or confidence would benefit from nurse-specific educational programming,” said ISTH Nurses Committee member and past chair, Maura Malone. “Consequently, these insights will inform the future educational offerings from ISTH for hemostasis nurses, and we hope this study will also be widely used as a resource by other organizations in this field.”

“The educational needs assessment highlights the need for ongoing education of hemophilia nurses,” said Kate Khair, the Chair of the WFH Nurses Committee. “This fits very well with the WFH strategic objective of enhancing medical and multidisciplinary health care provider expertise. Empowering nurses through education leads to better care and outcomes for people with bleeding disorders and their families.”

“It has been a pleasure and privilege for Bayer to provide support for this important initiative,” said Gregory LeCleir, Global Lead, Customer Engagement, Hematology at Bayer. “This program aligns fully with the strong commitment of our company to supporting the education of hemostasis nurses around the world and their critical role in the care of patients.”

The study was completed with the supervision of the GHNA Steering Committee, represented by the following members:

  • Regina Butler, RN, Philadelphia, PA, USA
  •  Kate Khair, PhD, London, England, UK
  •  Angela Lambing, MSN, ANPC, GNPC, Whippany NJ, USA,
  •  Maura Malone, MSN, RN, Lebanon, NH, USA
  •  James Munn, MS, BS, BSN, RN-BC, Ann Arbor, MI, USA
  •  Fiona Newall, PhD, MN, BSN, RN, Melbourne, Victoria, Australia

View the article online from RPTH here.

About the ISTH

Founded in 1969, the ISTH is the leading worldwide not-for-profit organization dedicated to advancing the understanding, prevention, diagnosis and treatment of thrombotic and bleeding disorders. ISTH is an international professional membership organization with more than 5,000 clinicians, researchers and educators working together to improve the lives of patients in more than 94 countries around the world. Among its highly regarded activities and initiatives are education and standardization programs, research activities, meetings and congresses, peer-reviewed publications, expert committees and World Thrombosis Day on 13 October. Visit ISTH online at www.isth.org.


About WFH

The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world. The WFH, an international not-for-profit organization, was established in 1963. It is a global network of patient organizations in 140 countries and has official recognition from the World Health Organization. For 55 years, the WFH has provided global leadership to improve and sustain care for people with inherited bleeding disorders, including hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders. Learn more at www.wfh.org.


About GHNA

The Global Hemostasis Nurses Alliance (GHNA) is an initiative launched by the International Society on Thrombosis and Haemostasis (ISTH) and the World Federation of Hemophilia (WFH), in partnership and with initial support from Bayer. Their mission is to empower nurses globally, as integral members of the healthcare team, through a unified approach to strengthen nursing practice that continually improves health outcomes for those with hemostatic disorders. Learn more at www.isth.org/page/ghna.


About AXDev

AXDEV Group is an international award-winning organization with more than 20 years’ specializing in applied, behavioral and performance improvement research in the health sector. AXDEV’s needs assessment and other studies have been published in more than 40 clinical and educational peer reviewed journals and presented at scientific meetings internationally. Learn more atwww.axdevgroup.com.


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