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ISTH Releases Survey and Begins Development of Educational Program on Gene Therapy in Hemophilia

Thursday, January 31, 2019   (0 Comments)
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CHAPEL HILL, NC, USA – The International Society on Thrombosis and Haemostasis (ISTH) is pleased to announce the development of an educational roadmap that will be used to inform the creation of programs and content to increase the understanding of the global hemostasis community and prepare healthcare professionals to evaluate gene therapy as a future treatment option for hemophilia.

An international steering committee of experts, chaired by Flora Peyvandi, M.D., Ph.D., and David Lillicrap, M.D., will guide the roadmap development. Initial educational opportunities will be announced at the ISTH 2019 Congress in Melbourne, Australia, in July.

“With the treatment landscape in hemophilia rapidly evolving and clinicians around the world being challenged to keep current with the latest scientific developments and clinical advancements, developing state-of-the-art clinical practice guidelines and education programs is critical to ensure best patient care,” Peyvandi said.

The ISTH will partner with the France Foundation, a renowned medical education company, for this project.

“The France Foundation is pleased to collaborate with the ISTH to educate clinicians around the world about the science and potential role of gene therapy for patients with hemophilia,” said Stacy Miller, France Foundation President.

To begin the development process, the ISTH has released this brief baseline survey about gene therapy as a treatment option for hemophilia. The results of this survey will help the development of educational programs and content for physicians and other healthcare professionals involved in the care of patients with hemophilia, as well as scientists with an interest in basic, translational, and clinical research in hemophilia and gene therapy. The survey will take approximately 5 minutes to complete.

The roadmap and initial educational opportunities will be announced at the ISTH 2019 Congress in Melbourne, Australia in July. 

For more information and to complete the survey, visit:

About the ISTH
Founded in 1969 and celebrating its 50th anniversary in 2019, the ISTH is the leading worldwide medical-scientific professional organization dedicated to advancing the understanding, prevention, diagnosis and treatment of thrombotic and bleeding disorders. ISTH is an international professional membership organization with more than 5,000 clinicians, researchers and educators working together to improve the lives of patients in nearly 100 countries around the world. Among its highly regarded activities and initiatives are education and standardization programs such as clinical practice guidelines, research activities; meetings and congresses, peer-reviewed publications, expert committees and World Thrombosis Day on 13 October. Visit ISTH online at

About the France Foundation
Founded in 1999 and based in Old Lyme, CT, The France Foundation (TFF), is an award winning, full service medical education company who has been at the forefront of planning, developing, and implementing multidisciplinary accredited medical education. TFF specializes in innovative education that continually combines the latest in the understanding of adult learning with creative program designs that improve providers’ knowledge, competence, and practical performance, with the objective of ultimately improving the care that clinicians provide. Learn more at

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