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SSC Subcommittee Shares Registry on Antiphospholipid Antibodies and Lymphoma

Wednesday, July 1, 2020   (0 Comments)
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The SSC Subcommittee on Lupus Anticoagulant/Antiphospholipid Antibodies askes for participation in the Antiphospholipid Antibodies and Lymphoma (NYMPHEA) Registry. See the description below: 

Data are controversial regarding the eventual role of aPL as markers of disease activity and progression in hematological malignancies, although some authors found a high prevalence of aPL in lymphoma patients and suggested that aPL are correlated with shortened event-free survival. Therefore, we propose an international register (5 years of follow up) in non-hodgkinian lymphoma patients with positive aPL. The study group population will include patients with all types of non-hodgkinian lymphoma (incident and prevalent cases).

The research on the association between the antiphospholipid antibodies and hematological malignancies has a major importance, as it has a potential impact on the identification of high risk population and would allow formal conclusions with respect to the role of aPL as a potential marker of prognosis and survival in this population. These results will have potential clinical consequences on the screening and therapeutic regimens in the high risk identified subgroups of patients. A computerized register with an inclusion form, available 24/7 over the Internet via the e-CRF will allow to each participating center to include patients.

Participate in this registry here.

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