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Obstetrics and Gynaecological Outcomes of Women with PFD
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Obstetrics and Gynaecological Outcomes of Women with Platelet Function Disorders

 

♦ Data Entry ♦

 

Objective:

The presentations and management of women with inherited platelet function disorders (IPFDs) and inherited platelet number disorders (IPNDs) in the obstetrics and gynaecological settings can be variable.  There is limited clinical experience in this area due to the rarity and the heterogeneity of platelet disorders. 

The SSC Women's Health Issues in T&H Subcommittee international data registry provides an opportunity to capture data worldwide to help culminate knowledge and experience in the different presentations, complications and management approaches. 


We encourage clinicians who have female patients with both IPFDs/IPNDs and obstetrics/gynaecological complaints to enter data of their clinical presentations, management and outcomes into this anonymised data registry using the link below. This will increase the total number of participants in this study and make interpretation of the data applicable world-wide. Data from this registry will aid in the development of a holistic guidance document and original article(s) on this heterogenous group of disorders.  

 

Survey Instructions:

The first page of the survey collects centre and contact details of the contributor. Please fill these in as it enables us to contact you in future if needed and also judge the number of contributions from each centre. Centres that enter 10 or more patient data onto the database will be included in the authorship. However, all who participate will be acknowledged in publications.


Upon clicking the submit button, the actual body of the data collection section will be seen. A PDF version of the registry is attached on the first page. The registry has been set up in an intuitive way so that inapplicable questions are automatically skipped. 


Due to the anonymised nature of the registry, we ask that patients are numbered from 001 onwards in each centre. It is important that the person(s) entering the data, keeps a separate confidential record to enable patient tracking should information clarification be needed in the future. 
Thank you for contributing your data. 

 

If you wish to participate in the questionnaire, please visit the Obstetrics and Gynaecological Outcomes of Women with Platelet Function Disorders here. 


Please contact Dr. Deborah Obeng-Tuudah at d.obeng-tuudah@nhs.net with any queries.

 

Project leads: 

Dr. Deborah Obeng-Tuudah1,2.3 and Prof. Rezan Abdul-Kadir1,2,3

 

  1. Katharine Dormandy Haemophilia and Thrombosis centre and Department of Obstetrics and Gynaecology, Royal Free London NHS Trust, United Kingdom
  2. EGA Institute of Women’s Health, University College London, United Kingdome 
  3. SSC Women’s Health Issues in T&H Subcommittee, ISTH
 

 

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