Join Mailing List   |   Jobs   |   Print Page   |   Contact Us   |   Sign In   |   Join
Share |

REDCap is a mature, secure web application for building and managing online surveys and databases. The ISTH installation of REDCap supports the ongoing efforts of ISTH Member projects and the Scientific and Standardization Committee Subcommittees' projects.

The ISTH REDCap platform can be accessed at Members that wish to use the REDCap installation should contact

Please view current available studies here:

  • WITEAM Study on Placenta-Mediated Pregnancy Complications and Thrombophilia
    The goals of this study are to evaluate the routine management practice, to collect data on safety and to describe the current maternal and fetal issues. This will be achieved via routine clinical follow up from the start date of the pregnancy until and including three months after delivery. The registry is based on a series of demographic and clinical data, some of which are mandatory. Clinicians from all over the world (hematologists or other specialists), who in their usual clinical practice may treat women with thrombotic gestational complications, can participate.

  • Current Apporach to DIC and Sepsis
    This study aims to generate insights in the physician’s approach to the diagnosis and treatment of Disseminated Intravascular Coagulation (DIC).

  • DIC and Obstetrics
  • This study aims to generate insights in the physician’s approach to the diagnosis and treatment of Disseminated Intravascular Coagulation (DIC) during pregnancy.
  • Pregnancy During DOAC Use
    The goal of this registry is to assess the effects of exposure to DOACs in utero on the fetus and the child on the long-term. It is a multicenter, international, observational cohort study, and the registry is designed to collect both retrospective and prospective data. Eligibility criteria for enrollment are women with 1) confirmed use of a DOAC, and 2) a confirmed pregnancy during DOAC use. Please contact Ingrid Bistervels if you are interested in participating.
  • Outcomes of Stents in Patients with Venous Thrombosis
  • There is uncertainty as to the antithrombotic management of patients with extensive lower limb DVT who have venous stents. As a first step towards defining best practices, the SSC Control of Anticoagulation Subcommittee is developing an international patient registry to determine anticoagulant and antiplatelet management practices and outcomes in stented patients with extensive lower limb DVT. In light of recently completed and ongoing RCTs evaluating pharmacomechanical thrombolysis for the treatment of extensive DVT, we believe this registry is relevant and timely.

    Diagnostic tests for heparin-induced thrombocytopenia (HIT) are associated with important drawbacks and many authors consider current diagnostic approaches to be inadequate in clinical practice. The aim of the present study is to develop a clinical prediction rule for the diagnosis of HIT. We will include 750 patients with suspected HIT. Our evaluation study will seek to establish that the diagnosis of HIT can be accurately predicted in individual patients at the bedside. Participation in this study not only helps improving care in patients with suspected HIT, but associates institutions with current concepts of diagnostic procedures. We invite all colleagues caring for patients with suspected HIT to evaluate feasibility of implementation at their institution and become a member of our study group.

    • International Registry on the Symptomatic Hemophilia A/B Carriers: The Pink Color of Hemophilia
      Women, symptomatic carriers of hemophilia are rare, but they have a quality of life overlapping that of affected males, they have the same symptoms and the same needs. Until now there are no registries or studies that consider all the aspects that distinguish the status of "carrier". The aims of our international Registry are to evaluate the real incidence of the symptomatic carriers of hemophilia A and B in the world population, the assessment of their Quality of Life (QoL) through appropriate scores, and the evaluation of the subsequent clinical outcomes.

     The primary aim is to assess the current diagnostic and therapeutic approaches for DIC in ICU, in   particular for sepsis-associated DIC. 

     To gather experience on the outcome of pregnancy, birth defects in neonates, and late effects in children of mothers who unintendedly have been pregnant while being exposed to DOACs.

    • Examining Current Practices in the Care of Pregnant Women With Low Von Willebrand Factor / Von Willebrand Disease

      The Von Willebrand Factor SSC Subcommittee, in collaboration with the Women’s Health Issues in Thrombosis and Hemostasis SSC Subcommittee, have developed a structured and comprehensive questionnaire to determine current international clinical practice in the management of pregnant women with Von Willebrand Disease. Analysis of the survey responses will provide an insight into the current clinical practices, treatment thresholds, definitions of and monitoring strategies for postpartum hemorrhage in women with Von Willebrand Disease. The data from this survey will assist in identifying the key areas of variance internationally among health care providers in this field.

    The study aims to investigate the obstetric history of mothers who have given birth to children with            Severe Congenital Protein C Deficiency (SCPCD), to determine the incidence of fetal loss during              pregnancy and previous neonatal death, which might be due to undiagnosed SCPCD.

    Membership Management Software Powered by YourMembership  ::  Legal